Jaxon Buell, Baby Born With Extreme Brain Malformation, Turns 1 — Jaxon Strong! (PHOTOS)
Jaxon Strong Buell
Credit: Brandon Buell on Facebook    


Jaxon Buell, Baby Born With Extreme Brain Malformation, Turns 1 — Jaxon Strong! (PHOTOS)


They asked for a miracle, and they got one. Brandon and Brittany Buell are celebrating the first birthday of their son, Jaxon Emmett Buell, a baby born with “an extreme brain malformation that the doctors are not even labeling with a name, and for which there is no cure,” they explain. They’re calling their son’s incredible story “Jaxon Strong.”


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“Ultimately, Jaxon will need a miracle long-term,” Brandon wrote in September as he created a GoFundMe page.

Yesterday (August 28), Brandon wrote on Facebook that Jaxon’s first birthday on that day is “a miracle, in and of itself, that through everything Jaxon has already been through, through his diagnosis, by the doubts of several medical teams, and with his perceived prognosis, he is still here, strong as ever, only dependent on a feeding tube, and can hear, see, talk, smile, laugh, and is learning more every day, even how to say ‘Mama’ and ‘Dadda’ directly to us.”

Family picture in front of the New England Aquarium.

Posted by Brandon Buell onThursday, August 27, 2015

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Brandon adds that he and Brittany have moved to Cambridge, Massachusetts, to be closer to Boston’s Children’s Hospital, “where our family's continued pursuit of answers for Jaxon's life, from the #1 medical team in the country, has brought us.”

As of the time of this post, Jaxon’s story has inspired 881 people to donate a total of $43,406 to his care. If you too would like to donate, head over to his GoFundMe page.

For Jaxon, there is so much to say and so much going on, no Facebook message or status could ever capture everything...

Posted by Brandon Buell onTuesday, August 18, 2015